2024 Update

Hey everyone! It’s been awhile since I put out a post and I genuinely feel bad about it. I’ve been wanting to write up some updates for a few months now but life keeps me on my toes and I haven’t had the time to sit down, take it easy and just write out everything like I used to. It can be truly crazy how fast time starts to fly by as you get older too. Speaking of getting older, today is my last day as a 34 year old. Tomorrow I’ll be 35 and add another year to this journey I’ve had called life lol.

Let’s go back a bit to catch everyone up (I wonder sometimes who’s all reading this these days) on what has happened lately. My kidney is still functioning well to my knowledge. My creatnine at last check was about 1.6 and they were fine with it. I honestly want to improve that number more and have been trying. My lymphoma is still in remission. Really the only thing that’s affecting me negatively are my bones and bone health. I went through a full heart examination (EKG, Echo, Stress test) and everything looked great. The whole reason for that was me explaining to my nephrologist that I feel very tired and weak some days despite my labs and weight and other tests showing I should be fine. I think I’m slowly hitting a point where my meds and the side effects of being on them for almost 35 years now are catching up to me. But to prove it’s the medication I needed to make sure everything else looked good. So I see the nephrologist next month and I’ll hopefully get some answers.

As a side story to add to my point, I broke my tailbone on March 2nd by falling backwards. I got some xrays to confirm it was broken but sadly there’s not much to be done about it other than to let it heal. I have periods of time where I feel like I’m being tested with everything that happens to me. If it wasn’t the physical pain and testing that got to me it was thing mentally testing me all at the same time. If it wasn’t for some of my best friends being there for me lately I’m not sure I would’ve made it. Social Security is always trying to question everything I do as if things are going to magically get way better. And that’s possibly one of the biggest mental stresses my whole family has to deal with over and over again every single year. It’s happened to the point that my mother had a heart attack at the end of last November. That whole situation didn’t help. I felt so responsible for much of the stress that lead to her heart attack because there’s literally something new going on regarding me almost monthly. Even when I am doing just ok and not terrible, I’ll be sent forms that do nothing but add stress. I know things come and go and when they happen they tend to happen all at once it seems sometimes. I just wish things would calm down a bit and we can relax a little after seemingly always having to stress about something.

But enough of that rant. It’s been an interesting year so far. I’ve had friends finally get kidney transplants after years on dialysis. I’ve also seen kiddos I know get news very similar to myself. There’s good and bad, they seem to go back and forth. While this year is an amazing start to some and a terrible start to others, I’m just doing all I can to enjoy every minute of peace and good times and I’m there to help others in their bad times. I’m finding out more and more my experiences, while tough for me, are knowledge that is going forward and helping others. And that alone, in a strange way, makes my experiences worth it. Cause helping others who were exactly where I was at one time is the most rewarding experience out there in my opinion. It’s a pretty damn good purpose if ya ask me. As someone who would wonder even as a child what their purpose was, I’ve finally found mine.