Hey everyone, wow what happened? I can’t believe it’s been over half a year without any updates on here. And that’s completely my fault for putting this off and losing track of time. I am the only one working on this site so things can slip by sometimes when life is busy. But in all honesty my life hasn’t been too busy. which is a relief for me because honestly with everything I’ve gone through I’ll take boring and not busy. But what hasn’t been boring is my engagement with others in the Kidney transplant community. I’ve started talking to more and more people and making more connections and even taking a few phone calls here and there which brings me so much joy because I feel my purpose shining through when I’m able to help others in any way. I’ve started to try to get into more and more groups and keep sharing my site in hopes it helps others and I think it’s slowly starting to happen. If I can give others just a little hope it’s one of the best feelings one can have. I also wish I could do more. I know it’s very helpful to many just to have a person with experience talking to them about a subject. I just hate the sideline feelings I can get at times. All I can do is give advice and then give it to God at that point. But part of me just wishes so hard that I could take away more stress and pain from anyone seeking help. Especially the kids who like myself have to grow up in this already tough world with a medical problem on top of it. I truly wish I was the last child to ever have to go through that stuff but I know that’s virtually impossible, at least in my timeline it is. But I do really enjoy helping folks out so very much and now that I’m starting to do it more and more I do feel like I have more purpose and my story will go further in time. And the bigger any of this gets, the more I will dedicate myself entirely to it. My name means Helper and I think I’ve fit that description pretty well so far.
As far as my health goes I’m relatively fine. I had to go to the ER over my blood pressure last month and I’ve been monitoring it often now as it’s been running a little higher than normal. I learned from the Dr I saw in the ER that if my blood pressure spikes again like that it would be okay for me to take a second dose of Carvedilol to bring it down. My right knee is starting to get to me more as AVN slowly progresses there. Soon I’ll need a knee replacement I’m sure. And overall my joints and bones still hurt daily but that’s all on Prednisone which I cannot get off of ever. But overall my kidney is good. Creatnine at 1.7 last check. I’m still hoping I can get it lower than that soon. Overall things are alright healthwise for me at the moment. My anxiety is a lot better but my depression is still there. But that’s normal. I’m just taking care of myself and trying to reach out to help others currently and hopefully it stays that way for awhile.
I want to thank everyone as usual for reading and checking out this site. I fund and run it all by myself so it means a lot to me when I see engagement on here. I’m also on Spotify now! I have a podcast out with Kidney Solutions so check that out if you haven’t. And please feel free to reach out to me anytime with any questions or comments. I promise I’ll have another post before 8 months roll by lol. I still can’t believe it was that long since the last post. Take care until then!
Link to the Interview:
The wait was worth it! Great blog Cody Lee. Keep up the good work,
Love you….mom