9 years after 2nd Transplant and more

Hey everyone. I hope those reading this are well. I’m still hanging in there the best I can. I’ve had my creatnine go up bit by bit over the last year or so but the good thing is at least it’s been slow and very incremental in it’s rise. I had a biopsy 2 weeks ago, the first one to be done to this kidney which is always a bit concerning and freaky only because it puts me back where I was 10 years ago learning that my kidney that my mom donated was rejecting after 25 years. Which the more I talk to my Nephrologist the better I feel about everything. I discussed all this with him and he spent a good 30 minutes with me. I still never knew why my mothers donated kidney was rejecting but found out it’s most likely due to wear and tear (there’s a much cooler name that I cannot pronounce lol). But all in all I did great keeping that one going and I’m hoping that with this current rise it’s due to the tacro levels and the fact that even though it’s a widely used anti rejection med, it does have some toxicity to the kidney as well. So best case scenario is that I just have to switch some meds around. But that’s in God’s hands not mine no matter how much I stress over it. So hopefully soon I’ll get some answers on that front.

Other than that I’ve just been helping others in various online groups. Answering questions and giving support where I can. I still wish I could do more but I have to give myself more credit for all I have done. That’s the one big thing I’ve started to learn is that I need to stress less and praise myself more which I always have had trouble doing. Soon I’m going to have to see a Dr about the terrible bruising and pain the Prednisone is now doing to me. I’ve had 2 hematomas in the last 6 months and just all around hurt myself way too easily. But I don’t let that slow me down. I’m still trying to improve myself as much as possible. I’ve lost about 15 pounds recently. Been working out more, eating better and all around just staying busy as much as possible. My support group keeps me goin as well. So all in all I’m hanging in there fine. I wish I could say the same for many of the transplant kiddos and folks I’ve helped.

I wish I could just fix everything for everyone going through any form of this stuff. Especially the kids. I grew up that way and while my parents made me not feel different and helped ease things, I know all too well that’s just not the case for so many and I truly wish I was the last one to have to go through any of this stuff. But I know God works through some of us to help others and I sincerely hope that I can accomplish some of that. These days I’ll be honest, I don’t get hardly any comments on here, and I get very little traffic. That might be the reason why I’m less attached to writing this stuff as frequently. But I’d like to hope that one day, maybe even after I’m gone, that these words will help somebody like me. I hear every kind of question from folks and love helping them all so regardless of whether this site ever takes off in any way or not, I know I’m helping a good few. I just wish I could be more, be bigger and spread awareness further. Hopefully one day really soon that will be a reality.

For now, I’m just beyond blessed to have made it these 9 years. I know so many who haven’t at this point. It’s just another reason for me to speak up more, I have to speak for them as well since they no longer can. After facing Cancer and COVID and multiple surgeries, I gotta say this 2nd kidney is kicking ass. It’s been through a lot, but that’s just more reason to do what I can while I’m here. Thank god for everyone who’s been by my side through all this. I wouldn’t be who I am without those folks who helped me along the way.